4766745
9781569244005
Carol Zapata-Whelan describes her son's struggle with the rare genetic disease Fibrodysplasia Ossificans Progressiva (FOP), focusing on the time of diagnosis at age nine to his first year in college (he matriculated as a pre-med student at the University of California, Berkeley, in September 2004). Zapata-Whelan illustrates how this struggle with FOP has shaped and strengthened her family, and how, as a mother, the experience has taught her to put her trust in the universe, and live life one day at a time. Through her son's remarkable grace and strength in dealing with his disease, she has learned that an unexpected encounter with suffering can be a blessing as well. Through flashbacks and anecdotes, Zapata-Whelan leads the reader through the ups and downs of dealing with FOP in everyday life, while offering insight, hope and guidance throughout.Zapata-Whelan, Carol is the author of 'Finding Magic Mountain Life With Five Glorious Kids And a Rogue Gene Called Fop', published 2006 under ISBN 9781569244005 and ISBN 1569244006.
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